Race for MLD

This last weekend we were able to participate in a race to support MLD. Our friends little girl who is a month younger than George has it. Her parents set up this foundation to raise money for research on this fatal disease. It was a 5K in Bountiful and there was a raffle drawing with great prises and even giving away a Jeep. It was a lot of fun to be able to support them and can't wait till next year. This is a very sad disease if you want more information on it you can go to www.teamgive.org or to just check out his organization. There is also www.elizaswish.org that is their daughters website that has a place to donate books to the Make a Wish Foundation. Hope to see you all there next year!!


It was such a long race that Spencer needed to wear his wrist bands!?!

Ruby

Ruby is here and there will be more pictures to follow but I only had my phone. I am sure Randi will post better ones but just wanted to get the word out. Ruby and Randi are doing great!!

Oh my Scarlooloo!!

When you have a girl named Scarlet and she has a few spare unattended minutes to herself there can be horrible consequences. I think the brunt of the unattended minutes have been focused on the couch. Which have given us great memories to remember. This morning was one of my favorites. Spencer came out to find her with my bottle of oil for my hair making a great design on my couch. Which is great because on the other side is her art work with a black pen, so we either get to look at oil marks or pen drawings, I can't decide what I like more.

The Culprit!!

The Victim!!

The Pen Drawing!!

So needless to say I am asking for some help. If anyone knows of someone getting rid of a couch that is in decent shape that we could take off their hands please let me know. And if anyone would like a girl named Scarlet we can arrange that too!!!

Just another fun thing she did, found some poster paint, AKA "Pretties" and put on some lips. It was a good thing it was labeled non-toxic!!!

My growing girth!!

So yesterday was my birthday, yea 28!! I went to lunch with my sister and my mom, my mom surprised me with a trip to Fetal Fotos. Sorry to all those who did not know, it's the third and I just did not tell that many people freely. But we were able to find out who is coming next. It looks like it will be Spencer LeGrande(Grant) Little, we will call him Grant after my great grandpa and Spencer after of course after his dad. I am so excited to see him and what he is going to look like, because George and Scarlet are so different. He could look just like me and have no hair at all when he is born and be a blonde?? Who knows but we are so thrilled here and Spencer is stoked for another boy, actually so is George.

Tag, I'm it!

Niki bugs me and I never do this but it is SNOWING and I would rather do a tag than look at the stupid snow!!

This is a picture in the 6th of the 6th!! George and Scarlet just chillin' on our blow up bed we bring out to watch movies. We only have one TV!! I think Scarlet is about 3 months and George is doing the usual, his tongue sticking out!!

How time fly's!

So I can not believe where time goes. It was three years ago today that we got the great news that there was a heart for my Georgie-Bean. I can still remember everything about that day. It was a Sunday and we were about to go to Sacrament meeting at the Hospital and one of the transplant doctors came in and started talking to us about traveling. We had no idea what he was talking about and we asked him if he was in the right room. He said ya this is George Little right? Then he said Oh you don't know he has a Heart in Kansas City and Dr. Kouretas is making plans to go pick it up. I could not believe what he was saying, it was like Christmas in March. We were able to get a hold of our families because they had their cell phones on them at all times. Both sets of grandparents were in church but we got them and I think they told everyone at church too. I called Randi and she had a running saying that she would say to me it was, Today is the Day. But this day she did not say it to me. So we chatted for a while and I told her Today is the Day and she lost it.
They told us about the heart in the morning but they did not take him into surgery till 5ish that night. We got hourly updates and the best one was that his new heart was in and beating on its own!! We got to see him around 1:30AM and he never looked better. He was pink for the first time and we will never see that blue boy again!!
This was truly a blessing and I am so happy to have him still here. His new heart is truly at home in George and I know he had a great friend who promised George in the pre-existence that he would help him out. They had to have been great friends for this heart to be so at home in George. Georgie, I love you and I am so happy you were able to stay here with us, I don't know what I would do without you!!

This picture is George on his 1st Birthday in the PICU waiting for a heart with RSV!?! The first birthday party that ever mother wishes for their child. He was on some serious medication that paralyzed his body so his heart could just rest and wait so he could no move or respond to us. But they let us all into the PICU and we sang Happy Birthday to him and he actually opened his eyes and looked at us he was our little red headed fighter.

This is George after his transplant starting the 5 week hospital recovery!!

This is George right after they extubated him. He was intubated for 6 1/2 weeks so the tube moved some of his teeth. You can kinda see it in the picture. They use wires to twist tie his chest shut but they only use steri-strips to keep the skin together. The patches on his tummy are from all his chest tubes and pacemaker wires. But I got to hold him!!!

Who would guess that this kid was ever sick, he is doing his Mr. Incredible pose, and I think he is Mr. Incredible!!

Another one bites the dust!!

Another year another Heart Cath. Yesterday we went in to Primaries for George's annual Heart Cath he was the second case so we did not have to be there till 9 which was nice. His cath went smooth, they said there were no problems through the procedure it was about 1 1/2 hours. The doctor said all his pressures are the same as last year which is great. His Pulmonary's have been narrowing but they look the same as last year too which is GREAT!! On his Coronary there is a part that is unusual but the same as last year. His anesthesiologist gave him some good anti-nausea medication so there was no throwing up when he was waking up, which he usually does. They said he never went into stage one waking up, he just woke up. Which was nice George waking up is not fun. George had to stay flat for 6 hours so we were there till 6 that night but not the end of the world. This morning was the worst, they put a pressure bandage on his leg where they go into his artery, and I get to take it off. We got a call from cardiology and they said his biopsy was 100% clean, which is great news that means no sign of rejection!!!!!!!!!! That was the best news of all, so till next year Cath lab!

Just a picture of George watching Marry Poppins while we were waiting our 6 hours!?!