We are slowly going grazy...

...one two three four five six switch, Crazy we are slowly going six five four three two one switch!!
I am in need of all your help. I am not sending George back to school until Kindergarten so I am in need of some ideas. I don't want him to be behind in learning so if any of you have good ideas of learning things I can do with him let me know. If there was anything your kids loved in school, something you do with them. Also if there are any outings that he may enjoy too. Really anything would help, I have designated a cabinet for all of his learning things so they do not get used up like his toys, just to make them special. I look forward to seeing your comments!

Shark Bites

When George gets a little older and his friends ask him what all his scars are from I think he should tell them they are shark bites. He has too many for it to be a boring story like heart surgery!?! But I thought I would post the picts of his new war wounds. The one coming out of his chest is his broviac where the nurses can draw blood and don't have to poke him, we like that. That is also where I give him his IV antibiotic. The scar on his side is where they went in and spread his ribs to clean out the junk in the lining of his lungs. The one under that incision is his chest tube hole. He has a matching scar on the right side from when he was 6 months old, I know it was just George's OCD that made him get this Pneumonia so he could even out his scars.

Scarlet needs some blog time too. I have never understood the pictures of kids falling asleep in their highchair but now I do. I went into the other room and George yells at me "She's asleep" I came in to see this. Luckily she did not have any food in her mouth when she dozed off.

So Sad!!

Everyone who knows me, knows that I love Harold's and worked there for many years. Well the other day they filed for BANKRUPTCY!!!! I am so sad but on the other hand everything is on sale. So everyone who likes a good deal head to Harold's they will only be open till the end of December.

Harold's we will miss you!

HOME!!!

We are home!! I can not believe it, we all had a good nights sleep and I am getting this nursing thing down. George still has his central line that I have to give him his antibiotic and we have to give him shots in his tummy to prevent clotting with his central line. We think we will have to do this for about 4-6 weeks but who cares I am just happy to be home with my kids.

When we got home yesterday Scarlet came walking around the corner and George was so surprised she could walk. I set him down and they gave each other a bonk on the forehead and started to laugh. I think they were both so happy to see the other and they have just been playing ever since. George has been doing so good at home it is easier for him to forget that he is sick at home.

We are here in our little bubble and I am not leaving for the longest time, that hospital stay was miserable, I don't want to have to do that again!! Thank you all for all of your support and prayers, we love you all.

Doing Good!

Georgie is still in the PICU but he is doing good they had talked about sending him to the 3rd floor today but his chest X-Ray did not look so hot. So we did some serious respiratory therapy and he was coughing out some serious junk. We also took a walk around the PICU and took a wagon ride outside, it was such a nice day. They are weaning him down on his Oxygen and he is doing great.

They placed his brovac the other day and it looks good I can not believe they will let them go home on them. They are tunneled into his chest but they look like one good tug and it is out. But is goes right into his SVC which is basically part of his heart which is crazy. So our little Georgie will not be able to take a real shower or tub till it gets out. He has been eating great and hopefully they will not want to put a feeding tube in him because I think he is eating as much as he would usually eat. They are fans of the feeding tube so they may have a fight on their hands. But other that the fact that he is doing great no real big news yet but I can not wait to go home!! Thanks for all your thoughts and prayers they are truly appreciated, I know we have seen the effect of them!!

Love you all!!

No Surgery Today!

So there was no surgery today the surgeons do not want to place the Broviac until he is a little more on the mend!! Which is kinda good because he only has the central line in his neck and he can not leave the PICU until it is out. So we are going to be in the PICU until it is placed which is good, they have excellent care there.

He had a great day today really laid back and they were able to get some junk out of his lungs which is good. His lung collapsed today so they will not be extubating him any time soon. But he is doing good and continues to get junk out of his lungs, he is out little fighter.

"Oh that's better!"

George did great in surgery, they suctioned all the stuff out of his lungs. They said there were some pretty big plugs in there. They did a thoracotomy and cleaned out the lining of his lungs which is very painful, they go in through his side and have to spread his ribs. They did a surgery like this one when he was about 6 months old and it is painful. Because of the pain they have him in the ICU intubated and on lots of drugs to keep him comfortable. They are planning on putting a line in on Sunday that will be a more long term line that he will be able to come home on to keep up with his antibiotics. No real word on when we will be home, I don't even ask because I know it will be a while and I don't want to get my hopes up.

The title of my post is a funny story. They were taking him into surgery and they gave him some good drugs and they took out his nasal cannula to intubate him and he said "Oh that's better!" He does not like tubes and stickers!! George is doing great he looks so good and he can communicate a little here and there with head nods and pointing. We hope he is on the mend now and we can get home to normal.